NurtureNextGen: Co-design of a digital tool to support families of children with genetic neurodevelopmental conditions to receive balanced prognostic information

Commonwealth Department of Health
Pieta Shakes
Role

Principal Investigator

Description

This project, led by Dr Erin Turbitt (UTS) was a successful MRFF application from the 2023 Consumer-Led Research Grant Opportunity. The project start was delayed due until 2025 due to parental leave. The AIMS of this project are to: 1. Co-design an evidence-based, consumer-led intervention: NurtureNextGen, a digital tool to promote a strengths-based approach to discussing genetic neurodevelopmental conditions. 2. Investigate the implementation and feasibility of NurtureNextGen to inform the design of future research testing outcomes in controlled trials.

Date

01 Jan 2025 - 30 Dec 2027

Project Type

N/A

Keywords

prognosis;communication;genomics;neurodevelopment;digitial health;codesign

Funding Body

Commonwealth Department of Health

Amount

0

Project Team

Pieta Shakes