Focusing on families' experiences of health care: choosing a qualitative research design

Journal Publication ResearchOnline@JCU
Hayles, Emily;Harvey, Desley;Plummer, David;Jones, Anne
Abstract

Patient and carer experiences of health care are important for service improvements. However, the literature available often evaluates experiences from a health professional perspective rather than exploring the perspective of patients or families. Health care of children with cerebral palsy directly involves and impacts families. Accordingly, research exploring experiences of health care for this group of patients and carers should adopt a family perspective. This article provides an illustrative example of the decision- making processes that guided selection of social constructivism and grounded theory methodology for a research project aiming to capture family experiences of health care for children with cerebral palsy in a regional area of Australia. Adopting a family approach for the investigation of experiences of health care should be considered for future research in the area of paediatrics, but also for other areas of health in which the family plays a key role.

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21

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1917-7909

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2

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9

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Ontario Association on Developmental Disabilities

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