Developing a physical activity program for Aboriginal families with Machado Joseph Disease (MJD) living in the Top End of Australia (Old ID 24672)
Role
Principal Investigator
Description
Worldwide, no research has been conducted to investigate the impact of physical activity on individuals with MJD. MJD is 100 times more prevalent in Aboriginal communities in the Top End than anywhere else in the world. This project will develop a physical activity program derived from the voices of the Warnindilyakwa people with MJD, scientific literature and strengthened using a modified Delphi consensus approach. The program is expected to: • Reduce the impact of MJD and keep families ‘stronger for longer’. • Be transferrable to other communities • Build capacity of community research partners • Develop resources for health services to improve care for MJD families in Australia.
Date
01 Mar 2018 - 30 Apr 2023
Project Type
N/A
Keywords
Machado Joseph Disease;Physical Activity;Rehabilitation;Spinocerebellar ataxia 3;Physiotherapy
Funding Body
Lowitja Institute-Aboriginal and Torres Strait Islander Health CRC
Amount
114076
Project Team
Alan Clough;Jennifer Carr