Improving Access and Community Trust in Perinatal Genomics for Culturally and Linguistically Diverse Communities: the ImpACT-PG project
Role
Principal Investigator
Description
A 2yr MRFF project led by Professor Lisa Hui (University of Melbourne) including 15 Chief Investigators from five organisations and four partner organisations. There is a critical need to ensure equitable access to perinatal genomic testing for culturally and linguistically diverse (CALD) communities in Australia. Our project adopts a novel, consumer centred approach to address this healthcare gap. By building the evidence base on CALD community experiences of perinatal genomics and developing the translational pathway to more equitable health care, our findings will empower all individuals to make informed decisions and support the well-being of their families. Project objectives: 1. Obtain new evidence on community values, attitudes, and experiences of perinatal genomics among CALD communities 2. Co-design, develop, and pilot culturally-appropriate, in-language health information resources for CALD individuals about perinatal genomics 3. Examine the ethical, policy and social implications of disparities in access to and experiences with perinatal genomics of CALD communities 4. Build capacity for population-based data collection and future monitoring of perinatal genomic testing in Victoria as a model for other jurisdictions
Date
01 Oct 2025 - 30 Nov 2027
Project Type
N/A
Keywords
prenatal screening;prenatal diagnosis;CALD;nipt;genomics;pregnancy
Funding Body
National Health and Medical Research Council (NHMRC)
Amount
20050
Project Team
Pieta Shakes;Cate Nagle;Helen Wright